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Brave battler Blake rushed to specialist unit in Edinburgh

The family asked people to keep Blake in their thoughts as he battles serious illness.
The family asked people to keep Blake in their thoughts as he battles serious illness.

The thoughts of thousands are with the family of an Angus boy as he battles a serious illness.

Blake McMillan was born with MECP2 Duplication Syndrome, which triggers mental and physical issues.

The three-year-old was taken to Ninewells Hospital with breathing difficulties on Tuesday, with mum Jenny posting Facebook updates through the Blake McMillan Trust page, set up to raise cash for those with the syndrome.

On Friday night he was rushed under police escort to a specialist intensive care unit in Edinburgh.

Alongside him were his family, who said “terrified” was an understatement.

Jenny said the toddler was “not out of the woods” but thanked staff who have been caring for Blake for their help.

“The amazing staff are working miracles and have managed to bring down some of the support required,” she said. “This does not mean he is out of the woods by any means, but it does look good for being able to transfer him.

“We are still terrified as losing him is still a very real possibility but we have a glimmer of hope.

“Keep Blake in your thoughts.”

Blake was to be moved to a specialist unit in Glasgow earlier in the week, but he was too poorly to be taken.

Last August, hundreds of people attended a fun day, at which the stars of movie Frozen wove a little Disney magic.

The Forfar fun day was organised by Denise Black, who was inspired to raise money for the Blake McMillan Trust after meeting Jenny.

Blake is only the fifth boy in Scotland to be diagnosed with the syndrome.

Individuals with MeCP2 duplication have delayed development of motor skills such as sitting and walking and many cannot walk at all.

Jenny had spoken positively when a cure was discovered in mice late last year, but said she could only hope Blake would live long enough to take part in medical trials in humans.