For sufferers of parosmia, everything they eat or drink can taste disgusting – like sewage, burning rubber or even rotten flesh.
After Covid, “huge numbers” of people are being left with health conditions that affect their senses and how sensitive they are.
And while around one-third of people with long Covid report a loss of taste or smell, others are facing a condition even more debilitating.
Scientists aren’t completely sure how the two link.
One sufferer of parosmia tells us his story.
What are the symptoms?
Almost a year after 70-year-old Lawson Mccullough had recovered from Covid, he was suddenly hit with parosmia – eliminating the majority of his favourite foods overnight.
He had to survive on just tomato soup and rice pudding as he was unable to stomach the “sickly sour” smell now associated with almost everything else.
For others, this can manifest as burning rubber, smoke, sewage or even rotten meat.
Lawson, who retired from the pharmaceutical manufacturing industry five years ago, says: “I thought everything was normal (after recovering from Covid) and forgot all about it.
“Then in February 2021, all of a sudden, parosmia hit and everything literally tasted disgusting.”
Have you experienced or are currently experiencing parosmia? – https://t.co/OcQDx8IPjO#fifthsense #taste #alltheosmias #parosmia pic.twitter.com/GJrVW29Roi
— Fifth Sense (@FifthSenseUK) September 23, 2021
He adds: “I’m very sweet-toothed and have been all my life.
Soup and chocolate
“And, strangely, chocolate was one of the things I could eat along with tomato soup and rice pudding.
“I ended up on a diet where I’d have soup for my lunch and rice pudding at teatime as that’s all I could face.
“I suspect there were others suffering much worse than I did – some people have gone from around 12 stone to six, or ended up in hospital because they just couldn’t eat.”
What causes parosmia?
At the moment, researchers don’t have a definite answer for how Covid can trigger parosmia in some patients.
It appears to be linked to damaged smell-detecting cells in the nose, and can also be caused by colds, sinus conditions or head injuries.
Some people who have reported anosmia – a loss of taste or smell – report their senses coming back, but distorted.
Medical journals have documented the likes of coffee becoming “a nightmare… began to smell pungent like gasoline.”
Is parosmia permanent, or is there a cure?
Lawson, who lives in Edinburgh, estimates his senses of taste and smell are now around 60% back to normal.
Over time, it’s thought most other patients will recover too.
While there’s no cure, some people have found nasal sprays and “smell testing” kits help ease symptoms faster.
Lawson got in touch with charity Fifth Sense, which offers advice on how to use essential oils or household items to retrain your sense of smell.
The practice has been endorsed by the NHS and is being researched by a number of specialist teams to see how effective it can be to “relearn” certain scents.
Lawson also spoke to his GP who prescribed a nasal spray, and advised taking zinc and vitamins A and E supplements.
“The spray is the one thing I’ve stuck with and I use it every morning,” he says.
For me, the only healer is time.”
“Lots of people online suggest trying this and trying that – ‘it worked for me’ – but most of us have discovered it’s purely coincidental.
“Some people’s parosmia clears up quicker than others – sometimes within two or three months. But others over a year or 18 months.”
He adds: “Most foods are tasting almost as normal, but I’m still having problems with breads and coffee. They still have this disgusting taste and smell. For me, the only healer is time.”
